Specialized Educational Recommendations for Children with the 22q11.2 Deletion Syndrome


Making learning fit the needs of the child.

Donna Cutler-Landsman 22q11.2 Deletion Advocacy

     
The 22q11.2 deletion syndrome (also known as Velo Cardio Facial Syndrome and DiGeorge ) affects 1 in 2000 students, yet most educators and physicians remain unaware of the unique learning needs of these children.  It is a relatively newly recognized condition, but over 20 years of research has greatly enhanced our understanding of how to best meet the needs of students impacted by it.  The genetic test to identify the syndrome has only been available since 1994, so older adults may have no idea that they have this genetic disorder. There is a wide variability in the syndrome, but almost all children affected need very specialized educational programs to make  progress academically.  Donna Cutler-Landsman is an author and educator with 35 years of classroom experience.  She has extensive experience in helping craft specialized educational programs for this population.  Services include advocating, staff training and development, transition planning, and school placement recommendations.


Available Services:
 
  • Educational Consulting including Individual Education Plan (IEP) recommendations and advocacy
  • Instructional Webinars and Staff In-Service 
  • Transition to adulthood planning including Social Security or SSI applications
  • Expert Witness Testimony, Due Process Hearings
  • Publications including the definitive reference on VCFS, 22q11.2, DiGeorge education


Latest news:

Family wins large settlement in educational due process hearing

related to Velo Cardio Facial Syndrome.  


Although I strongly advocate for cooperative problem solving with schools, sometimes families have no choice but to pursue the court system to get needed assistance for their child.  Read an excerpt from this groundbreaking decision that resulted in the district paying for private residential schooling for three years plus attorney's fees.  It is vitally important that districts recognize the complicated nature of this syndrome and to plan educational programs that address the unique learning needs of this population.


Click here for the discussion section of the judge's decision:




Free Webinar Series:

IEP Spring Check Up

Summer is just around the corner, so it is the perfect time to think about planning for the next school year and finding ways to maximize learning over the school break.  Ensuring a smooth transition between grade levels begins with a fun, stress free and productive summer program.   Discussion includes how to make the most of the time away from the pressures of the academic year.

Topics included:
Next school year’s IEP—things to do NOW
Extended school year (ESY)—is this an option?
Summer academic skill enhancement
Life skills training
Ways to improve social skills

Camp opportunities for children with 22q11.2​


This free one hour webinar is for parents, educators, and professionals and is sponsored through the Dempster Family Foundation.  
Click "General Audience Webinars" on the ruler above for more information.

 

An additional series of webinars targeted specifically to school teachers and staff,  "Striving for School Success:  Understanding the 22q11.2 Syndrome,"  is available in recorded form. There are separate sessions for pre-school/elementary and middle/high school educators.  Click "Staff Training Webinars" on the ruler above for more information.



Through a generous grant through the Dempster Family Foundation, families dealing with the 22q11.2 deletion can now apply for a limited amount of FREE consulting services offered through Cutler-Landsman Consulting.  

Visit the Education Station under the What We Do tab at dempsterfamilyfoundation.org to apply.


Getting Targeted Assistance for Schools

Do you have a student with the 22q11.2, Velo Cardio Facial, or DiGeorge?

 Now is the time for staff training.  Please contact me to arrange a 1-2 hour personalized staff meeting via SKYPE to learn about the syndrome and how to insure a great start for your new student.  

Call (608) 712-9141 for more information.

​Announcing Free Consulting Services!